Adverse Event Reporting & Appropriate Dialogue in Social Media for Health Care
Jonathan Richman is a respected e-marketer and the author of Dose of Digital blog, in which he writes there is a Myth of Adverse Event Reporting in pharma marketing. Drawing upon a Nielsen Study which found that only 1 in 500 postings on the Yahoo Health discussion boards met the full criteria for adverse event reporting, pharma may in fact be over-sensitized to the issue.
Do AER staffing requirements prevent social media dialogue?
Assuming that the Nielsen study is statistically significant (is a sample size of 500 from Yahoo sufficient?) then what resources would be required to audit a message board with high volume traffic?
Example 1: ADHD Message Boards
ADHD Message Boards is a site devoted to the discussion of attention deficit and hyperactivity disorder. A particularly popular forum is Parents of ADHD Children with 105,938 posts as of July 2009. Applying the Nielsen metric of 1/500 would yield 211 reportable adverse events.
Assuming an AER auditor could review 2 messages a minute, auditing this board would require 882 person hours – or 110 person days – over the life of the board. This would be an almost full time job were it not for the fact that ADHD Message Boards do not feature personally identifiable information (curiously, the site lacks both a privacy policy and a terms of use statement) so any reporting obligations on this site would be obviated by lack of an identifiable patient and identifiable reporter.
What about social media sites with identifiable information?
Facebook, however, is a completely different story, with members’ identifiable information including a first and last name, an email address, and often a phone number on the user’s “info” tab.
Example 2: ADHD Moms on Facebook
As of July 2009, McNeil Pediatric’s ADHD Moms page on Facebook counted 8,505 members. Assuming 1 post per member multiplied by the “Nielsen coefficient” would yield a possible 17 adverse events, requiring 70 person hours – or 8.8 person days – of monitoring. Of course not every member would post, and some members would post more than once, so these estimates are just back of the envelope calculations. This scenario is staffable.
It’s a matter of appropriate dialogue
Richman’s blog post suggests that “adverse events are nothing more than negative reviews” and compares them to reviews for computer products.
For example, someone ranks a product 1-star and says “this didn’t work on my Mac.” Well, if you have a PC, you aren’t worried. Simple example, but you see how it works.
I would agree with him, but only up to a certain point. When making a purchasing decision for a discretionary product, I am willing to accept that “Dave from Des Moines” or “Sally from San Diego” might be qualified to review a new piece of software or a computer peripheral.
But are they qualified to provide accurate information about prescription drugs beyond their own experience? Unless they are willing to also share their age, weight, lifestyle, diet and exercise regime, medical history and enumerate any other medications they are also taking, I say “no.” There are too many confounding variables for me to believe there would be much, if any objectivity.
Social media is merely an extension of direct to consumer advertising
Television viewership is down. Newspaper and magazine readership is down. Follow the eyeballs and you end up on the Internet. DTC spending was down 18% last year. Follow the money and you find a lot of people scrambling to recapture a portion of that DTC spend by reallocating budget to social media. There’s some great work out there done by stellar agencies, but…
- Do you really want to hear tweets from a race car driver about Rx drugs?
- Do you really want to hear one mother’s opinion about an ADHD drug without the back story that her kid drinks 3 sugary colas and eats 2 candy bars a day?
- Or wouldn’t you prefer to learn about your insulin from video featuring method of action and patient testimonials?
Social media is merely a platform, not an ends onto itself. So while Richman may be on to something with his “myth of adverse event reporting” the real question remains:
What evidence is there that patients want a dialogue with a pharmaceutical company given their lack of trust in the industry at large?
Listening without engaging may not be glamorous. It may not recapture the entire DTC spend. But given the recession, $80 Billion in concessions to the federal government, and the need to maintain a low profile until health care reform legislation is hammered out, what’s wrong with using social media as a distribution platform and skipping the public dialogue altogether?
What this means for your digital marketing initiatives